If you’ve had a stem cell treatment, how was your experience?

stem cell treatments

Have you had a stem cell treatment and if so, what was your experience like?

I really value the diversity of readers on this blog from all over the world. I know we have a lot of readers who are patients and have had stem cell treatments. Every week I get emails from people asking about stem cell treatments and clinics.

I encourage you to weigh in here in the comments if you or a loved have had a stem cell treatment. What was it like? If it was positive, why did you feel that way? Same if it was negative.

How much did you have to pay and did you think it was reasonable?

What condition were you hoping to improve?

How did you find out about the clinic and would you refer someone else to them?

Anything else you’d like to share? Feel free to remain anonymous if you prefer.

78 thoughts on “If you’ve had a stem cell treatment, how was your experience?


  1. Yes, I had stem cell treatment in Tampa, Florida, my experience was negative in that it, or the following meds that I was “required” to take made me very ill.
    I paid over $10,000.00 and no I thought it an unreasonable price.
    The stem cell treatment was for C.O.P.D..
    My husband first saw a billboard on the highway when they first opened
    and because of the lack of results I would not recommend the clinic.
    The clinic and the people were very nice but of course I was paying them handsomely and after the failure of the first treatment they wanted me to have a different stem cell treatment at almost twice the price of the first one.


  2. The last treatment I had was part of a study. I paid nothing to participate. Stem cell therapy has been life changing for me. I was couch bound and was prone to getting bronchitis and pneumonia frequently before having stem cell treatment. I also was taking several prescription medications prior to treatment and now I only take one. I have COPD. I would gladly refer others to the doctor who treated me but he is no longer treating COPD patients because of the FDA.


  3. I traveled to Sunrise Florida in January to the US stem cell clinic and had the adipose tissue lipo’d from my left flank. The treatment lasted ~ an hour and 1/2 – the cost is generally $5000 with a 2000 extra (optional) cost for banking cells to take home. I was able to secure a spot for half price allowing students to train on me. Cost $2500. I also received 10 syringes with Platelet rich plasma to take home and use every 4th day. It made me congested and was uncomfortable for a day or two after using the PRP in a nebulizer.
    Its hard to quantify any increase in lung function but this can be used as an adjunct to diet and exercise and the proper supplements. I would recommend that those who do opt for the treatment, temper expectations but also realize strict diet and exercise is just as important or more important. I definitely feel it has helped if only to put me back to a rough baseline or at the very least, psychologically.


    • Hi Jim- I’m having treatment at this clinic in the next week for an autoimmune condition(fat extraction followed by IV treatment.) I am having second thoughts because I have read about the lawsuits filed against the clinic. I haven’t talked to any patients who have been there and there aren’t any reviews online. It sounds like you had a good experience. Could I contact you by personal email?
      Thanks- Phyllis


  4. Donna – above in her comment, stated the second treatment option offered by her clinic. – I believe she may be referring to cells that are derived from bone marrow and the cost ( at least for me is prohibitive) at $12,000.


  5. On the 31/1/2009, I unfortunately had an anterior STEMI (heart attack) complicated by two VF arrest early in the post-infarct period, from which I was successfully resuscitated. My CK levels were recorded as 1479, although this will be influenced by the DC shocks. I was told after that it was a large infarct and made worse because there were no thrombolytic drugs available in Vanuatu where I lived. The doctor who looked after me was a miracle worker and he was on the telephone for hours to a specialist in New Zealand discussing what they could do and use to manage my problem. I survived as you can see but it took me some time to repair mentally and even today when I get ill it tends to play on your mind.

    Since then I have had 2 Adipose Derived Stem Cell (ADSC) treatments via IV in New Zealand. First in April 2012 costs NZ$8,000 and another in March 2014 costing NZ$4,000. My heart and kidney function improved by about 10-15% after the first treatment but slightly less after the second treatment. I am moving to New Zealand next month and in the process of arranging another stem cell treatment. The treatment is basically painless and it only takes a few hours and a day off work and driving. You just need to take it easy and wear a pressure girdle for about 10 days.

    I would just like to make a comment. I believe the treatment overall was cheap as I had a stent put in as the specialists hoped it may help my condition but after a visit some months later to check outcome they said it had not made any difference and was necessary. Not saying I would not have had it done if I had to choose but it did cost in total about NZ$30,000. Any medical treatment cost money and none can offer a 100% guaranteed outcome.

    After the first treatment I felt much better and was able to do almost all that I could do before my heart attack. This lasted for 12 to 18 months but I then notice that I was slowly losing energy and motivation to do things that is why I had another treatment. I fully understand and accept this is NOT a fix all but it has improved my life in general however I know that over time my health will deteriorate more so than normal people.
    My primary aim now, if I can stay well enough, is to find a hospital or clinic that is able to provide heart stem cell treatment using a mixture of bone marrow cells and cardiac cells grown from a heart biopsy to be injected back into the heart. I believe this will be an advance on the treatments I am currently having. I know the Texas Heart Institute is currently doing this but the cost for me and the chance of getting a placebo was not a workable option. I’m aware some doctors and researchers are using iPS cells, umbilical cord tissue cells or donors own blood cells however I have not followed up on any of these treatments.
    I am happy to discuss my venture and I’d like to make a point that what works for some will not work for others. Yes there are rogue clinics out there just to make money but there are also honest clinics, so do plenty of research and if possible talk to people who have had treatments for what you are seeking.


    • Yeah so how do we avoid the rogue clinics and find the good ones if we can’t mention clinic names!! Anyone know where to obtain such information OR know where I can get on a list to be included in a study. I need stem cell for my knees due to the crippling arthritis and can’t afford the $5k per knee I was quoted by a local clinic! Also how can I find out if this local clinic has a good reputation? Any help would be greatly appreciated!


      • I found this site while working on some marketing projects for the orthopedic office I work for, and although this post is from 3 months ago I wanted to offer a little info. We started doing the AlloGen injections a few months ago with great results so far. It is surprising to me, after researching the costs at other clinics, how much these injections are being marked up. I guess I am lucky to work for 2 orthopedic surgeons who are truly in this field to help people in our community, as they are charging less than half of what I have found to be the “normal” or average cost: we charge $2000 per injection, while the other clinics in our region average $4500-$6000 per injection. As one of the only clinics here in the eastern Michigan area who offer this treatment, we certainly could follow suit and take advantage of people who don’t want to travel the 2 hour drive to the Detroit area. We have patients who have called the injections “life-changing”, and I know that our physicians get more from hearing that then they ever would from overcharging their patients. As far as knowing how reputable a clinic is, I have found that most clinics, especially ones who would offer this type of treatment, have several ways for patients to leave feedback. Between Healthgrades.com, Yelp, Facebook, and Google (to name a few) you should be able to find feedback, as patients who have a notably good or bad experience with a physician are apt to share their experience with others. Good luck and thanks for reading!


  6. I have very good experiences with a PRP-treatment of the ankle of my brother. He was suffering from avascular necrosis for 7 years before he tried PRP and he was healed by PRP.

    Our experience is just n=1, but maybe other readers of this blog have used PRP, too?


    • I am receiving treatment for severe osteoarthritis of right ankle.

      I have previously consulted two surgeons and was a considered a candidate for ankle fusion with no cartilage left in my ankle. . My mobility problems was getting severe but ankle fusion was terrifying due to permanent lame condition that would result with a “successful” outcome to control pain.

      I have been treated with PRP followed 6 weeks later by autologous stem cells from fatty tissue taken from my mid-riff, then PRP again after another 6 weeks.

      5 months after the initial treatment I have improved greatly with regard to pain and functioning of my ankle. I used to walk with difficulty, for limited distances and use a cane. Now I only use a cane if I am going for a very long walk or a hike.

      Following the stem cell injections my ankle pain and foot swelling worsened for 3 weeks, and then suddenly started to become better. At 6 weeks after treatment I estimated a 60-70% reduction in pain, and some modest improvement in functioning. The clinical assistant told me that regrowing a cartilage layer even a few cells thick would dramatically decrease the pain compared to bone on bone contact. This seems to have been true in my case.

      It has been 10 weeks since my last follow-up PRP treatment and I continue to improve steadily at a slower rate, such that every two weeks or so I am in a noticeably better state. I normally have only slight pain in my ankle, but find it starts to significantly hurt after 2-3 hours of physical work. If I then sit down for a half an hour or so I am recovered. I only use a cane if I am going on a long walk or hike. I estimate a total pain reduction from pre-treatment of maybe 85-90% and greater than 50% improvement in functionality of my ankle (stability, rotation, strength, etc).

      I have opted for additional follow-up PRP injections. My naturopathic doctor says it is way too premature to consider another round of stem cells, and they may never be needed. The cost of PRP-stem cells-PRP treatment was $4,500. My insurance has covered some of the naturopathic consultation costs, so that number has been reduced by a few hundred dollars. Follow up PRP injections that I am initiating are about $600 each at 6-8 week intervals. I plan to continue this for another 6 months or so to gain maximum benefit from the stem cells.

      One final note for people with ankle arthritis. The rotten ankle joint had caused some of my mid-foot bones to shift out of position. The PRP is helping that and they are strengthening and returning to the proper alignment. I always felt like I was falling over on the bad ankle side. I have found that wearing “zero rise” shoes (no elevated heel relative to toe) or negative rise shoes (remember “Earth Shoes:?) to be very helpful.

      In my case, stem cells and PRP injections appear to be saving me from becoming permanently disabled. I can’t understand why it hasn’t been fully documented by clinical trials already.


  7. I have had 17 stem cell treatments. Some were autologous only, some were allogeneic only, and some were mixed autologous and allogeneic. I have SLE and I am holding my own with a reasonable quality of life. My disease is progressive and if I do nothing I get worse and will die no matter what. So the SC treatments have kept me going. For the first 24-48 hours after a treatment I feel like I can conquer the world. After that, real healing starts about 2 weeks after treatment and I can detect a noticeable difference. I have had treatments on West coast, east coast, and in between, different clinics. Cost has averaged out at 5K per treatment. I discovered the clinics by word of mouth. Some I would refer people to depending on their problem(s), others I would not.


  8. @Donna,
    I’m curious if the clinic discussed risks with you? Did they make any claims about what % of patients are helped? Did they mention up front that a 2nd treatment might be needed or only after the 1st one didn’t work?
    Thanks for sharing your story.
    Paul


  9. For those of you who have shared your stories as patients, am I right in thinking there was no insurance coverage and you paid yourself for the cost?


  10. Edward,
    Thanks for sharing your experience. Was the clinic upfront that you may need repeated treatments before you even got the 1st treatment? 17 treatments seems like a lot — over what period of time did you get these? Have you had any side effects?
    Paul


  11. @Jim,
    I appreciate your comment on your experience. Do I understand correctly that you were instructed by the clinic to self-administer by inhalation the PRP?
    Paul


  12. Hi Barbara,
    Thanks for sharing your experience. Is your stem cell treatment by inhalation or IV administration? Some other route? If the treatment is not through the airway system, but given into the blood, how did the person doing it explain that it would work for COPD?
    Paul


    • @admin IV (first pass is the lungs) and nebulizing. The study was done under IRB approval. I signed a NDA, but suffice it to say that the treatment was very helpful and I would recommend stem cell treatment to anyone suffering from COPD.


    • I had the stem cell treatment for my COPD. It has improved my o2 level from 93 to 94% I now have an o2 level between 95 and 97%. I do however have a very ugly side effect from the treatment. I am suffering from ongoing nausea. It has gotten so bad I spent 5 days in the hospital and am currently on 3 medications to try to control it. I also have to go get shots at least twice a week because the meds just don’t work well alone. I think it is a wonderful treatment but if I had know about this side effect I don’t think I would have jumped in so quick. I did do a lot of research and nothing mentioned nausea. I paid 5199 for the treatment in Tx. I received the treatment thru IV and also thru inhalation.


      • Katheryn when you went in the hospital because of getting sick from stem cell treatment did your insurance pay the hospital bill or did they refuse because you had stem cell treatment.I have copd and was thinking of doing a stem cells in New York on clinical trials.gov.NCT02216630 it cost about $7,500.they use your fat to get the cells from but they also have another type of treatment.They told me they would use younger cell in a nebulizer treatment for $2,500 and I would not have to do the Lipo suckishion.Has anyone done this treatment from Dr Ross on clinical trials please let me know.deegeardino@optonline.net. I really would like to know if you had a problem with the insurance in the hospital.


  13. @David,
    Thanks for telling us about your experience with stem cells. Have you had any cardiac function/imaging tests that show improvements or is it based on how you feel?
    Paul


  14. Insurance does not pay for experimental therapies, which stem cell treatment is considered. However, there are other options: clinical trials under IRB (Institutional Review Board) oversight for safety clinical trial, efficacy clinical trial, pay for cost clinical trial, etc. However, need to do homework on clinic, physicians, trial investigators, and any scientific publications to add validity to their work.


  15. Dear Paul,
    SLE (systemic lupus erythematosus) is a nasty progressive autoimmune disease that will cause a myriad of inflammatory problems in every organ of the body. Without continued treatments I would have died. But to answer your first question, No, they had no clue how many treatments I would need. I have received the treatments from multiple clinics over a period of five years and counting. When I start to regress from my last treatment I receive another treatment. An unexpected side effect occurred with the first allogeneic treatment. Once the particular problem was realized, it has not been repeated.


    • Thanks, Edward, for the reply to my question. I’m curious do you also take any non-stem cell treatments for your SLE?
      One of the other aspects to these stem cell treatments that I’m interested in is to what extent patients stop taking “conventional” pill/shot kind of treatments based on chemical drugs and switch over to stem cells OR if they more often combine the two.
      I wish you all the best.
      Paul


      • Dear Paul,
        I started with a board-certified Rheumatologist some 21 years ago after being diagnosed with stage-II SLE. I began with a “flavor of the month club”, i.e., AMA-approved chemical treatments for SLE. Basically there were/are none. But I tried multiple versions (singly and in combination) of prescribed antibiotics, antihistamines, corticosteroids, quinine, opioids, immunoglobulins, low dose chemotherapuetic drugs, etc. Nothing halted the progression of my disease, and in some instances actually accelerated its progression.


      • For 16 years I steadily progressed to stage-IV SE (death is stage-V). After a conference with my Rheumatologist in which I was told that the then symptoms I was showing was indicative of terminal lupus (death imminent) I decided on a stem cell transplant. That was five years ago. The stem cell transplants have done more for me than any AMA-approved chemical treatment. Currently, I try to restrict any activity that would cause an inflammatory response (i.e., lupus flare/crisis) resulting in the systemic deposition of scar tissue and decreases in functioning organs. Thank you for your empathy, it has been an interesting five years.


  16. I had an amniotic stem cell transplant into my right shoulder sixty days ago today.
    I had planned an IV transplant one month later if the first one was successful. After 30 days there was no difference in my ROM, pain and function. Today my crepitus is decreased by 40%, ROM improved by 40% and chronic pain at 1-2 vs 6-8 prior to the transplant. I am again considering IV transplant in about four months depending on my continued improvement in my right shoulder. The cost of the injection transplant was $5,000 and the IV was to be $4,000. I am a retired RN with 33 years experience, the last 20 years in a very busy large department in Sacramento. I also taught EMT’s at two college campuses in the Los Rios Community College District for twenty years. I’ve had several intra joint injections of corticosteroids so am experienced with the technique.
    The stem cell clinic was state of the art with the newest technological equipment. An RNP both did the initial consultation and after one hour I made the decision to proceed. She also performed the procedure with the utmost sterile technique. I held and examined the vial of amniotic stem cells prior to injection and inspected the label which was a FDA approved laboratory. This was shown to me during my consultation visit. The NP’s technique was so good with messaging the joint after injecting local anesthesia for about ten minutes. During that time the NP showed me several torn tendons in my shoulder and pointed out my “shredded rotator cuff”. I barely felt the stem cell injection needle, uncomfortable but certainly not painful. It was injected very slowly and I could see the stem cell liquid enter my shoulder joint from the needle on the Ultrasound. I had absolutely no post-injection discomfort.
    I never saw or met an M.D. while in the clinic.
    I spent several months researching this treatment including your website and had the full bio of the RNP before going to the consultation. I was very candid with her and she was equally as candid with me as we discussed her training, experience, and knowledge. I was very comfortable with her and would not hesitate to return for another treatment administered by her. I would recommend this clinic to anyone with joint disease or degeneration.


    • @Roberta,
      Thanks for the detailed description of your transplant experience. There’s been quite a bit of discussion about amniotic transplants. The biggest question at this point seems to be are the “amniotic stem cells” administered by the clinics (A) actual living amniotic stem cells or (B) protein extracts (i.e. no living cells, but material taken from stem cells at some past point).
      Did you have a sense from your experience what was used or was it not clear in this regard?
      Paul


      • Paul,
        I did not ask that question but the vial was refrigerated when she obtained it and asked me to hold it in my hands for the ten minutes she was messaging my shoulder after the local anesthetic agent was injected to warm it up prior to the injection. Does this help? Thanks, Roberta


        • Thanks, Roberta.
          Maybe things weren’t clear during the experience of getting the transplant, but what was your assumption/gut feeling at the time?
          Living cells? An extract?
          Did they say “stem cells” or “stem cell extracts”?


          • Paul,
            I felt she was using stem cells the entire time. The word extract was never spoken. In retrospect I wish I had asked her to keep the empty stem cell vial.
            Next time I will if I do go back.
            Thanks, Roberta


            • I know that in the ortho office I work for, we recently started doing amniotic “stem cell” injections, but they do not actually contain any living stem cells. It is somewhat deceiving as many clinics refer to them as stem cell injections, and technically they can call them that as the patients don’t typically ask whether the cells are alive or dead. I’ve even seen info from the manufacturer that did not come right out and say it contained stem cells, but instead gave info on some stem cell attributes that could be easily misconstrued. We carefully explain the injections to patients, and have not had any decide against treatment afterwards.


    • Thanks Roberta for you comments on amniotic stem cell treatment for your shoulder. Appears the clinic you had the injections is the one I plan to see for stem cell treatment for my neck disk degeneration. (Nervana, Robin?) I asked how many treatments they have done on the neck and back and was told they have done hundreds. May I ask how you rate this clinic’s expertise, operation and professionalism? Would you recommend them? If you like to reply to me only, my email is awau@email.com

      And how is your shoulder now some 6 moths later?
      Thanks
      Andy


  17. A full accounting of my experience would have to identify the clinic. Since the rules preclude a full accounting, I can only say this.

    I suffer osteoarthritis in one knee as a consequence of letting a surgeon loose on my medial meniscus back in early 1970’s. (Don’t ever let anyone do that to you!)

    I was not cured by my autologous bone-marrow stem cell treatment but my condition did improve. I cannot “prove” that my improvement was due to the stem cells or whether the improvement was caused by some other aspect of what was a very comprehensive treatment plan.

    It is important for me to point out that the doctor treating me was very clear that I was paying for an experimental treatment. I had read multiple peer-reviewed publications and had come to the conclusions that the treatment had a high probability of being safe and a small chance of a cure. My analysis was that other types of condition (eg tendon injuries) would be more curable using the same basic approach — which I broadly characterize as amplifying natural healing mechanisms.

    As a scientist, I am well aware of laboratory costs and I judged that the price was in keeping with the nature of the treatment. (Which, again, I can’t get further into without identifying the clinic.)

    Stem cells aside, I would highly recommend the doctors who I cannot name at the clinic that I cannot name.


    • @Brian,
      Thanks as always for weighing in and in this case talking about your experience at a clinic. I’m glad to hear that there was an emphasis in this case that what you received was experimental. Did they talk about potential side effects? Paul


  18. I’ll weigh in for my dog Ruby who is a sheltie X. She is 15 years old. She was very arthritic and having problems getting up from a seated or prone position and was falling fairly often. She had an adipose derived stem cell treatment a few months ago. She also gets laser therapy weekly. She is now able to get around easily and even breaks into a run now and then. Her cells are banked if she should need another treatment, but at this point, there is no need for it.

    The other option we were given was a host of steroid injections and pharmaceuticals, including pain medication. We chose not to do that and are extremely happy with our choice of stem cell treatment for her.


      • Her stem cell treatment was around $2500 which included X-rays and post treatment care as well as the banking. The laser treatments are complimentary at her primary vet’s office. He allows pet owners to come in and learn how to use the laser and then treat their pets at no charge. She is doing so well. It was worth every penny. She was so frisky today that no one would ever be able to tell she is 15. She also takes a joint supplement called Joint Max. I think many vets that offer laser have package plans. We are lucky that her vet doesn’t charge for it. Laser is something that you need to continue to do to reap the most benefits.


  19. I very much appreciate the level of research people have done, as I also did. This demonstrates that the risk of vulnerability to “snake oil” treatments can no longer be cited with the urgency that existed before the average person had so much information available to them.


  20. @Paul. Yes Paul i was instructed to administer the PRP by nebulizer. I was given a dozen syringes that I kept on ice in a cooler while traveling and kept them frozen then thawed them by keeping them in my hands for a few minutes and used one, every four days. I actually feel much better now after 3 and a half months.
    I still have some issues with exacerbations but have enough experience and confidence now to know the triggers and how to deal with the anxiety.
    I have been able to get out almost daily, if just to take a drive for coffee. I wouldn’t say its a significant improvement just yet but it certainly is a start in the right direction, and i don’t feel like Im falling off the cliff to spiral downward. Im happy just with a baseline like it is. I also found that N acetyl cystein – 600 mgs 3 times a day has aided me in lysing mucus production.


  21. 1. Injected MS maintenance drug daily for 5 years with terrible side effects. Other approved MS drugs offered had possible life threatening side effects, or I was unable to take due to exclusion criteria. Had one round of MSC’s for MS in 2012 with many quality of life improvements lasting to date. Two of the most helpful conditions eliminated were heat intolerance and fatigue. Cost can be anywhere from 10K-25K.

    2. In 2015, had 2 rounds of PRP over course of 6 mo., in right heel. PRP completely eliminated an extremely painful case of plantar fasciitis. Aprox $500 per treatment. I’m free of condition to date. Can walk/hike and go about daily living without pain. Option for traditional treatment were steroid injections or surgery with no guarantee of eliminating condition.

    3. Opted for a bone marrow aspirate during arthroscopic surgery to treat ACL skiing injury in left knee June 2015. Injury had no possibility of healing on its own. Had full recovery. Was hiking, biking, walking in 6weeks with a completely functional knee. Skiing full speed 6 mo. later. Costs aprox 5K. Traditional methods of knee repair were using a cadaver tendon or taking part of my hamstring muscle to repair injury, creating another injury. Traditional methods would have required 9-12 mo. intensive rehab and narcotics to treat pain.

    Each condition mentioned above was treated at a different clinic. I’ll chose my own cells over outdated more invasive options every time.


  22. Paul I have copd and I am looking at going into a stem cell trial on clinical trials .gov. The trial number is NCT02216630 you still have to pay for this your self,and they have one close to me in Manhatten N.Y. they use stem cells from your fat in your belly.I am a little scared of this,I just don’t know what to do at this point I am on oxygen 24/7. I am not sure I can inhale the glutathione ,besides were would you buy that for nebulizer med.Has anyone been there? Dee Geardino —e-mail address deegeardino@optonline.net


  23. @deegeardino You can ask your doctor to prescribe a nebulizer for you which will then be provided by your oxygen company or you can easily purchase one online.


  24. @admin,
    Yes I had an Echo Cardiogram that showed the improvement in heart function and also blood tests that showed kidney improvement. As said previously I am going to have another Adipose Derived Stem Cell (ADSC) before end of June. Prior to next treatment I will have another Echo Cardiogram and other required tests to set a base line point again. It will be interesting to see now after six and a half years where I am at now and then to see if any improvement a few months later after my next treatment.

    On another note my wife is also having a 2nd treatment for Arthritis. Her 1st treatment 6 years ago improved her condition greatly. She now feels it is time to have another treatment as some joints in hands and feet have started to hurt again. The 1st treatment also fixed her long distance eyesight and she did not need glasses any more. Confirmed by optician. It also seem to fix a old whiplash injury from 30 years ago. The ache/pain in her neck/back went.


  25. I’ve had four regimes of stem cell transplantation for multiple myeloma. I am alive because of good communication between my doctors, and I believe this treatment was highly effective.

    The stem cell transplants treated my multiple myeloma by restoring bone marrow with healthy cells, which later stimulated new bone marrow growth and aims to restore my immune system. I have not had convincing results with my immune system, but I am alive and in relatively good health.

    I underwent a conditioning regimen, involving intensive chemo therapy treatment aimed at destroying as many myeloma cells as possible. After nine months of therapy, my oncologist gave the green light to undergo the allogeneic stem cell transplant treatment.

    In the months following the transplant, my blood was regularly monitored my blood counts. I required numerous transfusions of red blood cells and platelets. I was told that my intensive treatments that I received before the stem cell transplantation was the source of my awful and stubborn infections. I was administered IV antibiotics to combat this. I was also prescribed a 2-year regime of drugs to reduce any risks of graft-versus-host-disease.

    At this point in time, I celebrate three years of remission. I’d go through the pain, discomfort and lengthy treatments all over – I mean, I was fortunate to have my condition diagnosed because of a bicycle accident. If not for a stupid driver, I might not have had treatment options.


  26. @deegeardino I would think before they give you glutathione they would check for sulfites in your urine. If you are on o2, 24 -7 you should be on nebulized medications already. I haven’t been to that particular clinic but I have gone to their competitor in Florida whose overall protocol is slightly different.
    From (the study you reference) what I understand, in their Manhattan location they do a secretions followup in nebulizer. Perhaps the glutathione you speak of. It is not yet indicated or approved for use in COPD. They also bank and grow a million extra concentrated adipose derived cells for a 6 month followup in the included price of 7Gs. In the clinic i went to, i took nebulized platelet rich plasma home instead of secretions. Would I recommend the procedure to you.
    Yes!! The cost is ridiculous I know but for your psycholigical well being I would recommend you give it a try if you can afford a treatment.


    • JIm, That office told me they wanted to use younger stem cells with me and I asked them what about redjections they than said there was no stem cells in it,it was called secretions what ever that is.I talked to a doctor yesterday that works with trials and there was a big stem cell meeting over these clincils .They haven’t stoped them because they are not using stem cells so they are not really breaking the law.He said to wait for Pittsburg to post on clinical trials.gov they are working on stem cell now. Dee


  27. ^^^ Clarification and edit of above post* “Perhaps the glutathione you speak of. It is not yet indicated or approved for use in COPD.”

    Glutathione is available for nebulizer by prescription for copd. The usual starting dose is 300 mg of glutathione (200 mg/cc, draw 1.5 cc and place in nebulizer) twice a day. Note: Patients with cystic fibrosis and other respiratory disorders can benefit from this therapy; however, it may cause bronchoconstriction in those with sulfite-sensitive asthma.


  28. To Jim Hannan, I am afraid of the Glutathion because I get broncho spasems every once in awhile where my throat closes up and it is very hard for me to to be able to get my breath right it feels like I am breathing thru a very tiny opening in my throat it is very scary.That happened once when I was using my Nebulizer.That is how I stopped smoking. I had a coughing spell and lit a cig to stop it and it closed my throat right up,never smoked again that is how scared I was,I try not to panick when this happens.I wish some people would spell out some of the thing they are talking about instead of abbreviate some things like BSCs Thank you Dee


  29. I would like to see any comments on using adipose derived stem cells from “belly fat” to treat neurological diseases such as Charcot Marie Tooth. The reply about using adipose stem cells to treat a dog was interesting. After some consideration,
    I decided not to undergo a test procedure, where adipose stem cells from (belly fat
    fluid) would be by IV into my blood stream and some 30 injections into the calves
    of my legs. The first treatment would be $8900 in early year 2015 and less if more were needed. This was to treat my hereditary disease, where nerve cells
    were being damaged by genetically defective t cells sent by my brain for normal
    replacement of nerve cells. A big question is how long will the treatment last, since the brain will continue to send defective t cells. As a temporary fix, the time
    where gain in mobility is improved is of most interest not to ignore safety. I will most likely not live long enough to see a gene modification procedure created to correct genetic diseases.


  30. I was diagnosed with progressive MS 20 years ago. By 2010, I could barely stand up, needing to sit down after a minute, and walking was excruciatingly difficult. June 2010, I had my first Stem Cell Treatment, a combination of my own adipose fat stem cells and umbilical cord stem cells. Results from this first treatment were very impressive. My legs were extremely strong and remain so to this day. I can stand up for an hour or longer if needed. My bladder was almost completely repaired. Prior to stem cells, I incontinence was the state of my bladder. That was not the case after that treatment.

    I receive stem cells once a year. The second treatment gave me no repair but I did receive that blessed relief from fatigue and weakness for about 6 months. The third treatment brought some kind of repair to the nerves leading to the bowels. I was now having a movement once a day instead of once every 10 days. I think this was huge.

    This last treatment made some repairs to the hip flexor muscle on the right side. Or should I say the nerve to the hip flexor muscle was repaired. I cannot lift my leg on the right side and before the treatment I was not able to lift it off the ground at all.

    So I need to clarify one thing. The last two treatments have been strictly umbilical cord stem cells.

    Judi Lecoq


  31. I failed to mention one very important point. A recent MRI completely baffled my neurologist, showing no active MS and two very very small old lesions that were not active. Woohoo!!! Stem Cells work!


  32. Jim Hannan,what is the secretions follow up you talked about,the N.Y clinic did say something about that but I did not understand what he was talking about, Jim could you write to me on my web address. deegeardino@optonline.net. There are a couple of things I would like to talk to you about.


  33. I had shoulder replacement surgery in the August 2011 which deteriorated by May 2014 (Osteolysis) with considerable wear of the plastic glenoid component. The TSA was revised, the glenoid piece removed, holes in the shoulder blade filled, anf the ball on the humerus changed for a larger one to take up the gap left by the absence of glenoid piece. The net result is an arm that has decent mobility but continued pain. As a serious side-effect of this operation is damage to the nerves which resulted in a lack of feeling in some of the fingers in my right hand, and a displaced nerve on the inside of my right elbow.
    Given my history with the right shoulder, and with the left shoulder becoming increasingly painful, I went to a local “pain clinic” (Crystal Coast Pain Management), seeking help. For about 10 months they shot the shoulder with steroids which became increasingly less helpful. The Dr. then referred me to Aegean Medical at the same location. They performed a Liposuction procedure, processed the results of same, and injected it into the left shoulder using fluoroscopic guidance.
    This cost me $2750, and resulted in some belly pain, but no discernable effect on the aching shoulder.
    Unhappily, I’m facing another complete shoulder replacement, or what ever the Duke Orthopedic establishment thinks is appropriate.


  34. I had Adipose Stem Cell Therapy for Multiple Sclerosis 3 years ago in California. I have had no real improvement and my stomach, where they took the fat, has so much pressure it feels like my stomach is hanging over my legs. I am not overweight but it feels like I am. Has anyone else experienced this?


  35. A cohort of 26 successive patients undergoing allergenic noncumulative stem cell transplantation is obtainable, all of whom were given a mixture of flabbiness and ATG. Patients’ characteristics are described in Table. RESULTS
    The allergenic noncumulative stem cell transplantation procedure was much better tolerated in contrast with the likely side belongings next a criterion myeloablative routine. As can be seen in Table, listing ordinary procedure-related toxic manifestations, next allergenic noncumulative stem cell transplantation no grade 3 or 4 toxicity (World Health association [WHO] criteria) were experiential in any of the recipients. For more information please visit at
    http://www.calweststemcell.com/


  36. On Sunday September 11, 2016, I received an amniotic stem cell injection for my right Achilles tendon. When I left the clinic I began to have a sore throat. Then as time progresses I had flu like symptoms.

    My Achilles had pain on and off. I continued to have flu like symptoms. By Thursday I had difficulty getting out of bed due to flu symptoms. I felt better once I was out of bed.

    I started feeling a lot of pain in my Achilles as the day progressed. By the time I went to bed the pain was unbearable! I couldn’t sleep at all that night.

    I talked to the chiropractor who was involved in this treatment. He said this meant the stem cells were really working. He said the doctor who gave me the injection could prescribe me a narcotic but I would have had the drive from San Diego County to Orange County to get it.

    I decided not to do that. Throughout the day I have no appetite because of the flu symptoms. I then started having severe pain in my right knee! I couldn’t move! I had pain in my lower back as well.

    I broke down and took Alleve. They advised against it but I was in so much pain I could hardly move!

    They said 300k received the injection with no side effects.

    I’m very disappointed! I paid $4500 for this injection to have days of misery and pain not going away by itself!


    • Wow Dee, you seem to have had a strong reaction from the stem cell injections, that was aggravated by your having the flu going in to it. Were you advised to apply ice or to stay off the foot for long periods of time? Did you get much advice at all about aftercare?

      I had a PRP (Platelet Rich Plasma) injection done on my left thumb joint on 9/14 which are suppose to be more painful than amniotic stem cell injections. The first day they did advise me to put ice on the area of the injection for 10 minutes on and 10 minutes off for several hours but the next day there was no pain at all and I actually got a 9 day break from the searing pain I’d been experiencing for many months! (Like someone slicing my thumb open from the lower palm to the second thumb joint!)

      It only started hurting again on Friday 9/23 but still the pain is no where near what it had been.

      I hope you still get some relief. The clinic personnel I was treated by in FL, said some people do have an inflamed response to stem cell injections and that it is always very individual with no way to know who will react and who won’t.

      I’ll write more soon about the amniotic stem cell injections I had on both knees last month for which I had no painful reaction (which worried me as I wondered if the stem cells weren’t working), but so far the results are very good.


  37. In ’04 I had to have meniscus surgery. In ’10 I hurt my lower back being a stupid man thinking I could move something heavy to a new rental house. I felt 5 rapid pops in my lower back. No pain. I did some stretching and went ahead and moved the stuff.

    Went to a huge teaching hospital in the Kansas City Metro Area. They did steroid injections into my knee and into my spine. L4 and L5. They worked once, but never again.

    I finally found a pain management doctor. I’m on opiods which work, but only give me about 3-5 hours of ‘up’ time.

    On August 8th he did a stem-cell prp injection into my right knee. The stem-cells he used (I forget the name) were from placenta and umbilical cords, which had been neutralized, etc. in the lab. The prp was done via a blood draw. Plasma Rich Platelets. For 3 days it hurt very badly. Because of the pressure in the knee area. But within a week, it wasn’t hurting anymore. I could feel things happening in there, but, it seemed to stop to a post operative condition, which was better than nothing. As much damage as was in that knee, I knew it would probably need several treatments.

    Then there was the back. My pain management Dr. wasn’t qualified to do this. But he knew someone in Kentucky. NOW THIS IS SOMETHING I WANT TO TELL YOU AND I WANT YOU TO READ, IT HAPPENED BETWEEN A FRIDAY AND A MONDAY.

    On Friday my paint management doctor told me that the KY doctor would be calling me Monday. Also during that weekend I went to my pharmacy to refill scripts. I got my Hysingla and it was a lower dosage. I went ahead and accepted it. MAJOR mistake. I came back in on Sunday to get it straightened out. They had filled a prescription that was stuck in the system from 7 months ago. Then Monday comes. No call from the AR doctor. Then Tuesday comes and I call him, he returns call. We chat. I send him e-mail like he asked. Then Wednesday……My pain management Dr. starts slamming me with texts about coming in with a 7 month old script. The pharmacy told them that I came in with it, which was a total lie to cover their butts. The pain management eventually called me and we worked it out, as I’ve never lied or failed a drug test with them. Then, later that day he sent me MORE texts that I shouldn’t of gone around his back and talked to the AR Dr. He then told me that he would not allow his friend to work with me.

    He said he’d refer me to a local

    So my advice to anyone reading is to be very careful what your pharmacy is filling. I don’t know how to tell you to find a good pain management Dr. because in Kansas City they are seriously hard to find. The FDA isn’t making it any easier either. Drugs like tramadol and tizanadine do NOT work for me. These are newer generation drugs that work on the receptors of the mind and don’t go to the site of pain.

    Anyway, sorry for the long story, but you asked for it. I’m desperate to find another place that will do stem-cells and prp in my right knee again and in my lower back. There’s always that company that begins with R, and they have an office in Kansas City, but, they are sooooooo expensive.

    I don’t have family to speak of. Just me and three dogs. I just want to enjoy life again and at 55 I’m not ready to give it up but if I go back to the pain I WAS in, I’ll wind up ending it by my own means.

    You’ll find it difficult to find people who even can comprehend chronic pain.


  38. I was recently diagnosed with FTD with PPA, and I was considering stem cells, the few doctors I spoke with said that the treatment either stop the progression or reverse or slow it down…has anyone used stem cells to treat this disease ?


  39. I am considering using umbilical cord stem cells for my autoimmune disease because I’m too thin to have the liposuction procedure here in the US. I’m wondering if anyone has travelled to Panama for treatment and if so, what was their outcome?


  40. My husband and I are currently chatting with a clinic about getting him treatment. He had back surgery in 2000 for a herniated disc with discectomy at L5-S1. His sciatica is so bad right now he is absolutely miserable. Family dr says they probably will not do surgery so we found this clinic. They use amniotic stem cells from C-section donors. The cost will be around $7,000. We are in the process of getting his CT scan sent to the clinic – I was relieved when they asked for it as I took this as a sign that they were not “snake oil salespeople”. I am currently looking for accreditation information on the clinic and their doctors. My friend’s sister had this done at this same clinic. She was waiting for a hip replacement and had severe osteoarthritis in her knees. She had injections in both her knees and her back (she thinks that they were wrong about the hip replacement recommendation). She went from a wheelchair to my friend not being able to keep up with her in the mall. It should be an interesting experience. We will just have to cash in some savings/retirement investments and try 🙂 Prayers for healing for all – chronic pain sucks.


    • Hi Tina. I just had stem cell injections done in Barcelona, Spain two months ago. They used the stem cells from my own bone marrow which they processed in the lab for 22 days before injecting 1cc (about 10 million of 100% stem cells) into both my L4-L5 and L5-S1 discs. I had 2 surgeries previously. Never had them fused. Costed me about $24,000 US dollars with includes the preop tests. They’ve been doing this for 10 years over there in Spain and even longer in Germany. They say results are about the same 85%-87% as an artificial disc replacement. But this stem cell treatment takes longer. What I mean is the stem cells don’t even start to transform and heal the body until 4-6 months after the injection. While most people are feeling pretty good a month after they get an artificial disc.

      That said, I still have pain as it has only been 2 months since the injection. But I’ve been able to reduce the level of pain some through exercise and other means. My idea behind choosing stem cells over an artificial disc is that it’s way less destructive to the body than having surgery. Surgery creates permanent damage. So I wanted to try this first before having a third surgery.

      Its important to note that stem cells alone will not do much to suck in the herniation or increase the disc height. But if there is still enough room for the nerve roots to exit between the vertebrae and the herniation bulge is not too severe it may be a good option. But I think stem cells may be good anyway just to repair damage and regenerate tissues in general. Just my personal opinion.

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